13 weeks 2 days ago (3 months 1 day ago)....Chiari Decompression Surgery-5 days hospital
10 weeks 2 days ago....Chemical Meningitis-3 days hospital
8 weeks ago today....Diagnosed with Papilledema
7 weeks ago today....Lumbar Puncture diagnosed with Pseudo Tumor Cerebri
4 weeks 3 days ago (1 months ago) Lumbar Drain Trial-8 days hospital
So Dammit....When Gabe gets his shunt placed. I refuse for there to be ANY complications Pre/post surgery, during recovery, ever. His shunt is going to work. He is not going to LEAK or get the "M" word. His shunt is not going to CLOG, BREAK, or JUST NOT WORK.
I REFUSE TO ALLOW ANYTHING MORE TO HAPPEN. I AM DONE...DO YOU HEAR ME SO DONE!!!! 5 year olds should not be on methadone and tylenol #3 round the clock. They should not be able to tell you how to put in an IV or do a Spinal tap or what a lumbar drain is.
DEEP BREATH!
Okay. I am better. I just needed to VENT. Well it was either that or open my cabinent and start throwing stuff, but since my pfaltzgraff pattern is retired and I could throw those damn PURDUE glasses but then I would have to sweep the floors and pay for co pays to the peds when the kids got little shards of glass that get into the hardwood floors in their feet, I will pass on that. So, I needed to vent. :)
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6 comments:
Just an idea...
I had a teacher who used to take the McDonaldland glasses and throw them against the back wall of her garage. She put an old sheet down to catch the glass and then gathered it and threw it away.
If you want to break something, maybe you should. Very powerful indeed.
Yup...sometimes a good rant...a really good vent...IS exactly what's needed....
i'm with you...
hugs....... a.j.
Vent away.. if anyone has earned the right, it's you guys.
I'm praying that Gabe gets some relief soon!!
{{{{{hugs}}}}} I wish I could do more than that.
I keep forgetting to come over here and read too, I've just been keeping up with the caringbridge site. Sending lots of hugs my friend. You have every reason to be frustrated and want everything to just be right. You still amaze me!
I'm sorry Gabe's going through all that. I've been thinking about you and it just breaks my heart that he's been put through so much. You are doing an excellent job and staying so strong! What a great mom!
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