Thursday, September 22, 2011

With a heavy heart...

I am just so sad. My heart is heavy and I cannot believe that someone whom I loved so dearly could be so mean to my child. If you are going to be a brat to me, that is fine. But lay off my kid. I ask for VERY FEW considerations for my children. I ask that if during dance classes that they need to lie down on the mats out of the way an observe, that they are allowed. I also ask that they be able to drink fluids as needed to prevent dehydration due to their shunt. I warn teachers when there are bad brain days. I explain that the headaches are bad and that their brains are processing slowly. We have a person in our lives who is being quite mean about these things. I have explained that past few weeks that Wednesdays are hard days for Gabe. That I have to wait until his shunt is exhibiting that he has high pressure before I just reset him. Just because he was at the school does not mean that his shunt reset itself. The past 3 weeks it has. It is a pretty consistent trend that I need to, but just to randomly reset his shunt because he was exposed to magnets is not a prudent thing to do.

I am tired of fighting for the few things that I ask for my kids. I am sorry that it takes Gabe too long to drink his water sometimes. I am sorry that his pressure on his brain is so high that he gets easily distracted or that he is sometimes so to respond or react to your command. It is not okay to tell my child that he cannot get a drink of water during "warm ups" when he has already warmed up for 2 previous classes and he is miserable and trying to push through classes. It is not okay for you to make my child feel badly about his health because it is inconvenient to your schedule.

My heart is broken. You are going to school to be a health care professional. Try to be compassionate.

4 comments:

The McFamily said...

I am sorry it is so hard, Michelle. Hugs to you.

hilda dada said...
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tiaolou004 said...
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Anonymous said...
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