Thursday, March 31, 2011

Wednesday March 30, 2010...

TUESDAY, MARCH 30, 2010 5:40 PM, CDT
It was a long night and the morning started off long. We were unable to break her cycle of pain. It seems by adding another anti nausea med we broke the cycle of vomiting however she is still extremely nauseated.

She went down for a CT of her head today. They wanted a baseline of what her ventricles look like now to monitor for hydrocephalus. The Neurosurgeon said that since we pulled her shunt this could develop. So we will continue to watch her for increased neuro symptoms.

Her pain is not well controlled. We are trying. After her CT they changed some meds. They changed her to a stronger pain med, started a strong anti-inflammatory and more GI meds. The first dose helped. Whether it helped or if the fact it knocked her out and let her sleep for a bit... but since then she has not received relief from the increased pain meds.

We moved to the 5th floor to a neurosurg bed this afternoon. Since then she has declined. She is having more symptoms of meningitis. Her neck is really stiff and she is not turning her neck and her head pain is horrid. We are in a dark room. She even went so far to tell her nurse that she wanted to die her pain was so bad. So we are waiting to see what neurosurg wants to do.

Yesterday we found out that Linds was growing Gram positive cocci in chain, clusters and pairs. Which infectious disease informed us could mean that she has more than 1 type of bacteria growing. This morning we were informed by the PICU that she was growing Staph Aureus. ID said that we would need to wait the full 72 hours before we could say that was the only thing that she was growing in her CSF. And yes that was what she was growing when we were here last.

I have had some questions about her appendix. Upon doing the ultrasound they found out that it was normal. The abdominal pain was inflammation to her peritoneal caviety. (peritonitis) The abdominal pain is better. The pain is only severe when her abdomen is palpated. So in that respect, that is doing better.

Infectious Disease was just here. We will have a game plan tomorrow after the cultures show sensitivities. We are looking at at least 14 days of antibiotics to treat the meningitis. Anything that we use to treat the meningitis will cover if she has anything in her abdomen (aka abcess). So now we take 1 day at a time.

Again, thank you all for the wonderful emails, messages on facebook and comments here. I have read them to Lindsay and she said: "Thank you so much for loving me!"

Love to all,
Michelle

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