Monday, September 28, 2009

7 days and counting.....

Next week at this time, Gabe will be having his 4th cranial expansion surgery. I cannot grasp why our single suture metopic craniosynostosis child is going through this, again. I thought May 2003 our journey with cranio ended. Then I thought that same thing in February 2005. In June 2009 I was very hopeful that this was the end of his cranial space issue, and 14.5 weeks later, here we are again.

This time around there will be no wires, no helmet. They are going to remove sections of skull and use titanium plates/mesh to make areas of his cranial vault. This should *hopefully* prevent his head from caving in, and allow the brain ample room to grow. We are worse now than we were before his surgery 14.5 weeks ago. THAT is hard to say.

Last night I was in that desperate feeling mode. Today, I am better. I prayed and turned it over to God. I am not in control of what is going to happen or the journey that is planned for my child. I have to accept that. I know that God will keep Gabe safe and that his hand in on Gabe in this journey. I am not sure how people who do not have a relationship with God do this. How they traverse this journey. I need him there to give me strength.

1 comment:

Lynn said...

Hugs and as always you all are in our thoughts and prayers.