In 2004 my pediatrician Dr A, put me in contact with another mom whose little boy Andrew had craniosynostosis. Andrew had his surgery at the end of August 2004. Ellen, Andrew's mom and I, keep in contact. It is not as frequent as it could be, but still she and I know the right thing to say when we are frustrated.
Ellen even came to visit us when Gabe was in the hospital for his second surgery. Andrew was having a follow up with our plastic surgeon.
However, Ellen has a beautiful new baby boy named Jonah. Last week while on a walk with her husband and children she noticed a ridge on his little head. They took him into the peds and his soft spot is almost closed. Tomorrow he has a CT scan, however there will not be a team there to put his under, he has to sleep thru it. He will also be seeing the NS and PS. If you could please say a little prayer for Ellen, Jonah and their family I would be so appreciative.
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2 comments:
Prayers for baby Jonah!
that's terrible. Poor Baby Jonah. I will keep in in my thoughts.
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